VAL NETO 19/08/ /12/2005

Transcrição

1 Liver Patients Association Vision and Activities Emília Rodrigues SOS Hepatites Portugal President VAL NETO 19/08/ /12/2005 First Post (08/07/2004) in the Blog to support patients with hepatitis C and their Families. This Blog helps to creat the Association SOS Hepatites 1

2 2005 1st. Direction 21 April 2005 Emília Rodrigues Val Neto Win Vandevelde 2

3 Objectives Divulgation of viral hepatitis inthe portuguese population Divulgation among health professionals Risk factors, forms of transmission, prevention and treatment Support patientsand families Programmes and activities of information Edition of publications Objectives Organize meetings between patients Promote the formation of psychologists with expertise in chronic liver disease Promote the formation of nurses specialized in palliative care Colaborate with other national and international organizations with the same objectives (ELPA, others) 3

4 Office Office 4

5 SITE TV awareness, information RTP RTP TVI 5

6 TV 2008/05/19 TVI SOCIEDADE CIVIL Newspapers and magazines Horas Jornal Destak Jornal Expresso CM DN Diário Económico DN 6

7 Newspapers and magazines Jornal Metro (Capa) Metro Jornal A União (Leiria) Newspapers and magazines 7

8 Newspapers and magazines 2008/08/24 News in another sites 8

9 News in scientific/medical societies News in another sites 9

10 Join Ventures Instituto Nacional de Resposta a Incidentes de Segurança Informática Delegations CHAVES Coordinator Anabela Taveira Psychologists Nurse Lawyer Communication Maira Diniz Sónia Vilaranda Cristina Imaginário Natalina Afonso Elizabete Fernandes 10

11 Delegations CHAVES Other places Coimbra, Faro Olhão, Santarém, Oporto VIPS 2006 VENDA PASCOA C.C.COLOMBO 2006 SIC CONTACTO 2007 CORRIDA DAS ESTRELAS JoséPedro Reis Karen Motzenbacher José Pedro Reis 11

12 National Meetings National Meetings 12

13 International Meetings (ELPA Symposium) (ELPA Symposium) Our Targests War veterans Surgery, transfusion, blood donors Miscarriage Elevated ALT, GGT Piercings, tattoos Haemophiliacs Drug addicts Prisoners HIV 13

14 Awareness FIL APRESENTAÇÃO MASCOTES FEIRA DA SAÚDE Porto Karen Matzenbacker José Pedro Reis Mascotes Fátima Oliveira 14

15 Awareness 2007 LANÇAMENTO LIVRO HISTÓRIAS SEM ROSTO CARRIS Awareness 2009 World Day Hepatites Chaves Castelo Porto Casa da Música Coimbra Câmara Municipal Lisboa Baixa Pombalina 15

16 Awareness PORTO FOZ LISBOA BAIXA POMBALINA Awareness 2010 DIA MUNDIAL DAS HEPATITES FLASH MOVIE HOMENAGEM PROF. DR. RUI TATO MARINHO 16

17 Colaboration with other professionals 2005/03/16 I WORKSHOP APRESENTAÇÃO SOS (SINTRA) Michel Bonjour Val Neto Prof. Dr. Rui Tato Marinho Dr. Luis Tavares Dra. Maria José Campos Representante Câmara de Sintra Colaboration with other professionals 2007/09/29 II WORKSHOP COIMBRA 2008/05/14 WORKSHOP AUDITÓRIO DE CHAVES Enf.ª. Elza Alpalhão Dra. Isabel Gonçalves Enf.ª. Cristina Imaginário Anabela Taveira Dr. Presa Ramos Dra. 17

18 Publications SOS LIVROS DE INFORMAÇÃO E DISMISTIFICAÇÃO CARTAZ A3 CENTROS DE SAÚDE / HOSPITAIS Publications SOS Folheto Campanhas de rua Postais entregues nos bares e discotecas Marcador de Livros 18

19 Publications SOS Folheto B Folheto C Poster Vacinação Scientific Committee Dra. Paula Peixe Dra. Isabel Pedroto Prof. Dr. Armando Carvalho Prof. Dr. Rui Tato Marinho Dr. Leopoldo Matos Dr. David Pires Barreira Enf.ª. Elza Alpalhão 19

20 2500 Support to Patients and Family Doente Patient Homem man Doente Patient Mulher woman Familiar Homem man Familiar Mulher woman SOS Hepatites TOTAL Doentes TOTAL Familiares Patient Doentes man Homens Patient Doentes Mulheres woman 891 Familiares man Homens 753 Familiares woman Mulheres Support to Patients and Family Doente Patient Homem man Doente Patient Mulher woman Familiar Homem man Familiar Mulher woman SOS Hepatites TOTAL Doentes TOTAL Familiares Patient Doentes man Homens Patient Doentes Mulheres woman 891 Familiares man Homens 753 Familiares woman Mulheres

21 Thank You! Merci bien! Muchas gracias! Dank! Tack! Grazie! Bedankt! 21